Anabelle's Journey: One step closer!!

Thursday, March 15, 2012

One step closer!!

Today we came in and Miss Anabelle had her repogule out and is off the oxygen monitor!!! Less tubes and cords! YAY!!! The repogule (I'm sure I'm spelling it wrong) is the tube going down to her stomach and sucking up all the gross stuff. Well, it's not gross anymore but just normal spit, and that's why she got it out today. Now she is only attached to her PICC and to her leads for her respiratory and heart rate. So it's really only three total tubes and wires when I get her out to hold her!! And there is nothing attached to her face, which is awesome because we haven't seen her without something attached since the day she was born and before surgery. I can tell she really likes it though. It's a lot easier for her to suck on her binki and move her tongue around. We are still waiting for poop though... The surgeon came by yesterday and did a rectal stimulation. He said that it usually helps get things moving, and he sees results in 5-10 mins (typically). Of course Anabelle isn't typical so over 24 hours later, still nothing. He came by again today and said she could have her repogule removed and hopeful that will help, but if not in another day or two he will order a suppository. We will see...

Also the physical therapist hasn't come by yet to show us what to do... I am just hoping that she will come by soon so we can start doing stuff.. Although her movement is so improved! We've noticed that her right side has a lot better range and movement, and her left seems more contracted. But both sets of fingers seem to be relaxing more. So encouraging!

So a nurse in the NICU runs a parent group every Thursday for us to gather and just talk. Talk about whatever. I went today. It was nice.. Just being around other parents that know what it's like to be in the NICU long term and understand how crazy it is. Just being able to relate. We all have different issues and problems with our babies. I honestly kinda felt guilty because the majority had premies with big health issues, mostly breathing. And Anabelle is doing so great with breathing now.. and as long as she poops then we know she is fine, we just have to wait.

Ok ok ok. Now for the real reason of the blog. PICTURES!!

I know it seems mean, but I love pictures of the girls crying.. I think it's kinda cute!