Appointments galore

To make sure I do update regularly, I am going to start updating on Saturday's and Wednesdays. It just makes it easier for me. I might miss a day here and there, and it will either be due to no new updates, or due to out crazy schedule. 

Lately I've been trying to focus on all of the positives in life. Be thankful for our family, and our three beautiful girls. Try not to be upset because doctors can't get their act together, and just enjoy each day we have. It can get hard though. Especially at 2 am when Anabelle is exhausted, hungry and just wants to sleep. But can't because she wants to eat, but is having such a hard time with the eating/breathing combination... Or when I'm trying to give her her medicine for reflux, and she chokes on it and starts to turn colors... 

I want to get to know her and her personality, but don't think that this is truly how she is. Basically she is always upset, and I have no idea which issue is making her mad at that second.. Are her casts itching? Is her tummy hurting? Is she having some refulx? Is she just mad because she can't breath? and so on and so on... I honestly feel that *fingers crossed* after Monday we will be able to start to learn who the real Anabelle is. We finally have our appointment with an ENT doctor! We also have an appointment with a GI on the 15th. We won't be able to get an appointment for a sleep study until June, but are hoping the doc will change it to urgent on Monday and be able to move it up. We are still waiting for an authorization for the modified barium swallow study. Luckily, we finally have a case manager through our insurance. So instead of me calling the doctor, calling the medical group, then calling the other doctor, i have someone to do it for us. 

Oh, and I'm off work again. Thank GOD I have wonderful bosses who understand! Honestly, such a huge weight is lifted, thanks girls!! 

And now for the best part, pictures :)

Our attempt at a bath with casts, wasn't to successful

 I don't think she liked it...

 Ducky towel, thanks Deb! 

 & thanks for GG's blanket too! She loves it!

 Look at her stretch! 

Sisterly love <3

Until Wednesday :)


With love, 
The Polks