Day 8 at the hospital

Yesterday Anabelle had a bad case of reflux. I laid her down to change her diaper, and BAM! She couldn't catch her breath, started to vomit, etc etc. I called her nurse once to see if her feedings were just a little to high for her to tolerate, and she said no, she's fine. And if she continues to have episodes then they will call the doctor. And just FYI, Anabelle is at risk for aspirating, so her reflux and vomit could go back down into her lungs. It's not a simple, 'Oh she's fine, no biggy. Just a little reflux.' So she was still having issues when the nurse left and I went out to request the doctor come by so we can talk to him, and went back to our room. I guess she followed me, cause as I walked in she was right behind me, luckily. Anabelle's stats went down and she was vomiting. At times it seems like the nurses only believe us when they see it for themselves. Then another nurse came in, and another. The put her on a nasal canula (I'm sure that's misspelled). Luckily she was doing better in the wee hours of the morning so they took it away. 


Today was a big day for her. She got off oxygen, got her casts off, had a P/T consult, got an IV ripped out of her hand... Oh and she is still recouping from surgery 3 days ago.  They bumped up her feeds from 10 mls, to 15 mls, to now 20 and fortified. She is on continous feeds, so she is getting 20 mls every hours, which is just under an ounce. She is still refluxing but seems to be ok. 


OH. And we got Amelia and Allison back from sitters yesterday. They've been gone all week. And i don't know what ahppened, but Amelia's little attitude is horrible! She thinks she is way older then she is, and has attitude for 5 little girls. I don't know how we're going to live through her teen years. 


I don't know how we will get through this next year! It's been so crazy and hectic these past few months. I feel like we haven't been able to really get anything done for Anabelle as far as her AMC goes. Oh, but her knees do look a lot more bent. But it just seems like we keep hitting dead ends with P/T and whatnot. So frustrating! That mixed with my disability issues and hiccups, and work needing papers and not understanding I'm not home right now, I live  at the hospital currently. Stop calling me! Ok, I feel a little better now. Maybe...


Hopefully Anabelle can come home tomorrow, but I'm not holding my breath anymore. I've heard this so many times, I just want to make sure she is ready, no rush this time around. But I'd like to remove the stress from hospital trips from our mix. We will see! 


With love, 
The Polks